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Erastes [userpic]

tmi update

September 2nd, 2012 (08:32 am)

13 days of it today and I feel like hell. I’m bleeding worse today than I was a week ago. Yes, I'm taking my iron pills like Smarties but they don't seem to be keeping up--I don't know whether taking the iron pills is simply making it worse. I feel like screaming because I had to go and have my Warfarin blood test on Friday. There was NO WAY I could have managed it unassisted, as I can't even walk into the kitchen without having to sit down, so I had to take Dad with me so we could pick up a wheelchair at the entrance. (The haemotology dept is about fifty miles from the entrance—ok, an exaggeration, but it’s the furthest away from the gate that you can get.)

Anyway, went and had the tests, and the whole day was stressful, as you can imagine—with Dad asking where we were going every ten minutes—but we got it done. I was even more exsanguinated by the time we got home and I was white as a ghost and exhausted.

Then this morning I got a letter from the Hospital saying that the blood sample was TOO SMALL and can I come in again asap. Seriously I could weep with frustration. Plus my Warfarin are nearly out, so I’ll have to ring the doctor and see what the solution is.

Why won’t it STOP?


Posted by: Plutonian #2 (moreteadk)
Posted at: September 2nd, 2012 09:14 am (UTC)

It's good that you're a journaling sort of person, because otherwise I would have told you to write this all down so that you can remember it when next you speak to your doctor. If he then can't come up with anything that you can try to fix this problem ask you can have someone else's opinion. 13 days of menstruation is NOT normal and if your doctor thinks it is, I would advice looking into switching doctors. Asap.

Posted by: Erastes (erastes)
Posted at: September 2nd, 2012 09:52 am (UTC)

Thanks dear - I once bled (although much more lightly) for an entire year and no one could find out why - had a barrage of tests. but this time i want something done, drastic - i may only get these every 3 months or so, but I don't think i can stand another one, the impact on my life is horrendous. I can't even write down the worst aspects of it. Not publicly at least.

Posted by: Plutonian #2 (moreteadk)
Posted at: September 2nd, 2012 10:00 am (UTC)

If you have a history of it, I don't understand why the doctor doesn't seem to think it's a big deal. I do hope you can get it sorted out now.

(Deleted comment)
Posted by: Erastes (erastes)
Posted at: September 2nd, 2012 10:24 am (UTC)

it's like he simply doesn't give a fuck--"oh well she'll be in menopause soon, so why waste the money?" he's never even taken his hands off his keyboard to examine me. The pills I have for blood pressure can be damaging to the kidneys and he's supposed to check that regularly? does he, boys and girls? answers on a postcard.

Posted by: mysid (mysid)
Posted at: September 2nd, 2012 11:49 am (UTC)
Calvin & Hobbes hug

DEFINITELY time to change doctors--or to hit this one upside the head with a blood-soaked sanitary pad. Being in the USA, I have no idea how difficult/easy is it for you to change doctors, and I seem to remember you discussing once before that your choices were limited where you live. However, this one is NOT DOING HIS JOB!

I rather liked that idea that was given to you in a previous post: save all your blood-soaked pads, tampons, etc. and give them to the idiot doctor. "This is how much I bleed. This isn't normal!"

Posted by: Erastes (erastes)
Posted at: September 2nd, 2012 12:46 pm (UTC)

I can't even use pads, to be honest. Lots and lots of kitchen towel and cut up pieces of towelling and several pairs of knickers. Not something to be proud of, but the only way I can manage. Even a superplus tampon is useless in five minutes. seriously.

Posted by: The Devil's handmaiden (seraphim_grace)
Posted at: September 2nd, 2012 01:18 pm (UTC)
call nhs direct!

I had this happen and my doctor sent me to A&E!
the whole going through the big tampon in five minutes
you might want to try using a mooncup, it'll probably give you about an hour with a pad
I am anaemic at the best of times, and I ended up getting an iron shot (that was hell)

call NHS DIRECT and ask for their opinion, it might be nothing, but it might be something and it gets you a quick opinion there and then
they will reassure you if that's all you need
0845 4647

if you can drink, go out and buy tons of guiness original, the one in the bottle with the yellow label, it's pretty much liquid iron, it is really good for this, although it tastes like swamp water
PHONE YOUR SURGERY AND DEMAND A NEW DOCTOR, A LADY ONE! because a woman will know how hellish it is and will come up with some sort of solution

a heavy period is one thing, two weeks of constant bleeding is not.

Posted by: Marion (aunty_marion)
Posted at: September 2nd, 2012 01:27 pm (UTC)
Re: call nhs direct!

Hear, hear. Seconding this - that much bleeding is ridiculous, and is not just 'a heavy period'.

Posted by: Becky Black (becky_black)
Posted at: September 2nd, 2012 12:35 pm (UTC)

I agree, make an appointment with a different doctor if there's another one at the practice, or if not, register at a different practice. Hey, they've given us all this "choice" in the NHS, go for it. And everyone is entitled to a second opinion anyway. Explain to them that you're not being a difficult patient or anything, but that the current doctor just is not listening and isn't remotely appreciating the distress this is causing you. Make sure they also understand that you're a carer and if you end up unable to take care of your Dad then that's an expense that's going to fall on them?

Why do you have to go to the hospital, with, like you say, miles of corridors to hike through, just to give a blood sample? Can't it be done at the GP's by the practice nurse and sent off? Hell, given your position as a carer with your dad to look after, why can't they have the district nurse drop in and take a sample from you at home? There's too much "oh, that's the way it's always done" in the NHS.

Posted by: Erastes (erastes)
Posted at: September 2nd, 2012 12:44 pm (UTC)

Oh yes, there's a practice nurse, but she's never been able to get a drop out of me (hidden veins) - and they are only allowed three goes now and then they have to stop. When I'm well enough, I don't mind going to the hospital because there are at least 3 nurses in the dept there and if one fails another can take over - but because they do it all day every day, they very rarely fail. It's just now - walking that distance would be impossible!

Posted by: Becky Black (becky_black)
Posted at: September 2nd, 2012 01:00 pm (UTC)

Ah, I have the same problem with my veins. They are very sulky. Got signed off giving blood because of them.

Why do they build hospitals with one entrance so you have to walk miles and miles to get to the departments? how about a few more entrances around the site? Alternatively - hire golf buggies to punters to get there. Hmm, I shall write to Andrew Lansley forthwith!

Posted by: Rikibeth (rikibeth)
Posted at: September 2nd, 2012 01:26 pm (UTC)

Wait, you're bleeding like a spigot and they still have you taking warfarin? Are you at SUCH heavy risk for a clotting stroke or something that they still feel it's necessary? Because -- experience with an ex-father-in-law with bleeding ulcers -- that warfarin's only making it worse, otherwise!

Hope they get it sorted soon, and maybe incontinence knickers meantime?

Posted by: Erastes (erastes)
Posted at: September 2nd, 2012 01:28 pm (UTC)

oh yes, knickers in use, believe you me - no wonder i could never even consider a relationship!

Posted by: asphodeline (asphodeline)
Posted at: September 2nd, 2012 06:08 pm (UTC)

That's the sort of bleeding I was having all the time and it really needs a doctor who will do something. It could be that your Warfarin is making the bleeding worse (ie by thinning your blood) so that defintiely needs to be explored.

Also, ask the GP about having a home visit for blood taking - you are caring for your Father and seriously ill yourself so really need the help. So frustrating to be so far away, I want to come and KICK your medical people.

Posted by: grace_roberts (jessie_lansdel)
Posted at: September 2nd, 2012 08:16 pm (UTC)

God, how ghastly for you hun. I reckon it MUST be the warfarin doing this, but surely to goodness the bloody GP should realise. Makes me wonder just where they received their training. Wish I could help as I can imagine how horrible it must be for you.
The doc needs a ruddy good kick up the arse.


(Deleted comment)
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